Narcolepsy Support Organizations
Connect with others in the narcolepsy community
Support groups and organizations can provide information, connection, and more to people living with narcolepsy and their loved ones.
Founded in 1986, Narcolepsy Network is a US-based 501(c)(3), member-led community organization that works to educate, empower, and connect people impacted by narcolepsy.
Through the lens of advocacy, education, awareness, and support, Narcolepsy Network delivers programs and resources in the form of clinical updates and research, webinars, support groups, and advocacy opportunities. Narcolepsy Network also hosts an annual conference offering
Project Sleep is an organization raising awareness about sleep health and sleep conditions, including programming to empower and support people with narcolepsy.
Project Sleep’s Rising Voices program helps foster a new generation of patient-advocates by encouraging people to share their personal stories to improve public understanding of sleep disorders. .
World Narcolepsy Day (WND), occurring every year on September 22, is dedicated to raising awareness of narcolepsy on a global scale, uniting the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide. .
Project Sleep also hosts the Narcolepsy Nerd Alert series, where fellow #NarcolepsyNerds can explore aspects of the narcolepsy experience, contemplate bold questions, and learn from each other. Live broadcasts happen on the last Wednesday of every month. .
Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization that seeks to raise narcolepsy awareness, bringing direction to the search for a cure while providing a strong community of support to patients and caregivers.
WUN offers free, targeted online support groups to individuals with narcolepsy and their families worldwide. Their programs are designed to bring together individuals who have been affected by the diagnosis of narcolepsy and provide the support and community necessary to thrive. .
There are several other resources and events supported by WUN, including education day videos and webinars, podcasts, fundraisers, and awareness campaigns. .
Day4NAPs is a platform with a mission to raise narcolepsy awareness by sharing stories of people living with narcolepsy and fundraising events happening worldwide. .
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